Children & Your Lupus
Even though you’re the one with lupus, your entire family lives with the disease. If you have children in the home, learn how to talk to them about it in a way that’s right for them.
I know my kids worry when I’m having a bad day. I always try to reassure them that Mommy really wants to go to the park and it’s lupus that’s in the way.
Don’t hide it
It’s important to find a balance between telling your kids too much (and possibly scaring them) and hiding your lupus from them. What to say and how much to share depends on your comfort level for sharing and other considerations, such as your child’s age.
2 and under
Children 2 and under won’t understand very much about lupus. They’re only focused on if you’re there for them and meeting their needs—and that can be as simple as snuggling or reading them a book when you’re not feeling well. Reassure them as much as you can.
3 to 6
With children 3 to 6, separate the illness from you. Make it clear that it’s not you who doesn’t want to play or cook dinner. Have lupus carry the “blame.” Let them know that even though your body isn’t working with you today, there will be days ahead when you’ll feel better.
It may seem scary, but you can communicate with your children during the tough times. Your honesty can help them learn valuable coping skills for a lifetime.