Resource Organizations

For additional information about lupus, visit the following sites or contact the following organizations.

Please Note: These resources are external to Us in Lupus and GSK. GSK does not have control over the content or information provided through these resources, and accordingly does not warrant their accuracy or completeness.

The AAD is a national organization for dermatology dedicated to achieving the highest quality of dermatologic care for everyone. It can also provide referrals to dermatologists.

Visit the Website

AARDA is a nonprofit voluntary agency dedicated to bringing a national focus and collaborative effort to the more than 100 known autoimmune diseases through education, awareness, research, and patient services. By collaborating with the National Coalition of Autoimmune Patient Groups, the organization supports legislative advocacy for autoimmune disease patients. It also provides free patient education information, physician and agency referrals, forums and symposia, and a quarterly newsletter.

22100 Gratiot Ave.
East Detroit, MI 48021
(586) 776-3900
1-800-598-4668 (to Request Literature) Fax: (586) 776-3903

Visit the Website

The ACR is an organization of doctors and associated healthcare professionals who specialize in arthritis and related diseases of the bones, joints, and muscles. The Association of Rheumatology Health Professionals, a division of ACR, aims to enhance the knowledge and skills of rheumatology health professionals, and to promote their involvement in rheumatology research, education, and quality patient care. The association also works to advance and promote basic and continuing education in rheumatology for healthcare professionals who treat people with rheumatic diseases.

Visit the Website

The foundation is dedicated to supporting arthritis research, and to providing educational and other services to individuals with arthritis. The foundation publishes a free pamphlet on rheumatoid arthritis and a magazine for members on all types of arthritis. It also provides up-to-date information on research and treatment, nutrition, alternative therapies, and self-management strategies. Chapters nationwide offer exercise programs, classes, support groups, physician referral services, and free literature. It also offers free information about lupus, scleroderma, and other autoimmune and rheumatic conditions on its website.

1330 W. Peachtree St., Suite 100
Atlanta, GA 30309
(404) 872-7100

Visit the Website

HealthFinder is the HHS website for consumer health information, where you can find additional sources of information about lupus.

Visit the Website

The LCTC is a nonprofit organization that encourages the identification and testing of promising new therapies for lupus. It provides infrastructure support grants to academic institutions to support clinical research activities, encourages lupus clinical researchers from those institutions to share their expertise, supports and conducts educational efforts to show the need for lupus clinical research, and disseminates scientific insights to advance the discovery of new lupus therapies.

221 East 48th St., 2nd Floor
New York, NY 10017
(212) 593-7227

Visit the Website

The Lupus Foundation of America is a national nonprofit voluntary health organization dedicated to finding the causes of and cure for lupus, and to providing support, services, and hope to all people with this condition. The LFA and its network of nearly 300 chapters and support groups conduct programs for research, education, and advocacy.

2121 K Street NW, Suite 200
Washington, DC 20037
(202) 349-1155 1-800-558-0121

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Born from the merger of three organizations with a common belief in the potential for science to overcome lupus, the Lupus Research Alliance is at the forefront of driving innovative research that can make a difference for people living with the prototypical autoimmune disease. With that shared conviction, the Board of Directors promises to cover the organization's administrative and operating costs, ensuring that 100% of all donations go directly to funding research programs to realize our vision of a world free from lupus.

275 Madison Avenue, 10th Floor
New York, NY 10016
(212) 218-2840 1-800-867-1743

Visit the Website

NIAMS, a component of the National Institutes of Health (NIH) within the US Department of Health and Human Services, conducts and supports medical research on the causes, treatment, and prevention of diseases of bones, joints, muscles, and skin. The organization also trains scientists to carry out this research, and disseminates information on research progress in order to improve public health.

1 AMS Circle
Bethesda, MD 20892-3675
(301) 495-4484 1-877-22-NIAMS (1-877-226-4267)
TTY: (301) 565-2966 Fax: (301) 718-6366

Visit the Website

Rheuminations is a private nonprofit foundation committed to funding excellence in medical research in order to foster a better understanding of the causes of lupus and bring new treatments to market. The organization also strives to educate and empower those who live with lupus and those who care for them, and to establish a higher level of public awareness about the disease.

221 E. 48th St., Ground Floor
New York, NY 10017
(212) 593-5180

Visit the Website

The FREE Lupus Symptoms Reference Kit can help you identify, track, and gain a better understanding of your symptoms.

It includes:
  • Lupus Checklist: Record symptoms and health changes.
  • Lupus Impact TrackerTM: Rate how lupus is affecting your life.
  • Lupus Dictionary: Define lupus-related terms.
  • Lupus Journal: Collect your thoughts about your lupus.

Contact a lupus support specialist toll-free:

1-855-US-IN-LUPUS

(1-855-874-6587)

M-F 8:30 a.m.-5:00 p.m. ET