TAKE ON LUPUS
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WiLL
ON-SCREEN TEXT:
WHY AREN’T MORE PEOPLE WITH LUPUS CONCERNED ABOUT ORGAN DAMAGE?
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Victoria Gibbs
Fitness Enthusiast, Lupus Warrior
@whatgibbs
VICTORIA:
“You think it can’t be you. You think that you’re the most resilient person and will bounce back and maybe aren’t really actually paying attention to some of the signs that are present.”
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“from a patient perspective, without that type of education, i'm not going to be thinking about organ damage.”
Jenneh Rishe
@liveabove_illness
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Jenneh Rishe
Registered Nurse, Lupus Warrior
@liveabove_illness
JENNEH:
“Our providers aren’t putting it into our head, and not in a fearful way of ‘This is what can happen to you,’ but in a way that gives a patient knowledge to then feel empowered to make the right changes and use the tools, you know, to try to prevent organ damage.”
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WHY SHOULDN’T WE PUSH THROUGH FLARES?
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Latoya Shauntay Snell
Marathoner, Caregiver
@iamlshauntay
LATOYA:
“That one flare, even if it’s ‘minor,’ the way that, you know, sometimes we kind of, you know, rationalize it: ‘This is not as bad as the last one.’ Or, ‘This one didn’t put me in the hospital.’ That one flare is still a lot.”
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“kidney damage was the last thing on my mind, or any kind of organ damage.”
Victoria Gibbs
@whatgibbs
ON-SCREEN TEXT:
Victoria Gibbs
Fitness Enthusiast, Lupus Warrior
@whatgibbs
VICTORIA:
“For me, I had really bad kidney issues with my lupus, and this year, in particular, has been very challenging, and to be completely honest, kidney damage was the last thing on my mind or any kind of organ damage.”
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HOW CAN WE WAKE PEOPLE UP TO THE LUPUS–ORGAN DAMAGE CONNECTION?
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Jenneh Rishe
Registered Nurse, Lupus Warrior
@liveabove_illness
JENNEH:
“I really think hitting home that point that, like, one flare could be the thing that kind of sets you over the top as far as advancing to organ damage or whatever. It may be having patients have that understanding, I think, is really important.”
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“i never thought about the idea that one bad flare could really do some damage.”
Shannelle Gabriel
@shanellegabriel
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Shanelle Gabriel
Poet, Singer, Lupus warrior
@shanellegabriel
SHANELLE:
“My most recent doctor’s visit, I switched rheumatologists. I love who I have now. I loved who I had before, but I love who I have now, and one thing she asked me was, you know, ‘Do you have, you know, how often do you have lupus flares? How often is it active?’ ‘And I was like, you know, ‘Oh, just, you know, once or twice.’ And I never thought about the idea that, you know, that one bad flare could really do some damage.”
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HOW DO WE MOVE FORWARD? WHAT LIES AHEAD?
ON-SCREEN TEXT:
Victoria Gibbs
Fitness Enthusiast, Lupus Warrior
@whatgibbs
VICTORIA:
“You know, I think we all have to take heed and be humble and just realize that, no, it can be me and just stay proactive and, you know, keep up with those doctors’ appointments and listening to your body.”
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“we may be helping someone with our stories. we may be empowering someone.”
Latoya Shauntay Snell
@iamlshauntay
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Latoya Shauntay Snell
Marathoner, Caregiver
@iamlshauntay
LATOYA:
“We have to not only give ourselves space for ourselves to be able to talk about it, but give space to others to be able to learn about it. We might be helping someone with our stories. We may be empowering someone with their stories. Might be giving someone that ‘aha’ moment of ‘I’m not crazy.’”
SHANELLE:
“I believe that lupus, itself, you know, it can be a disruptor of any plan, but that doesn’t change the fact that I need to still make sure I have a plan.”
ON-SCREEN TEXT:
WiLL TAKE ON LUPUS
US IN LUPUS
Trademarks are owned or licensed to the GSK group of companies.
GSK @2023 GSK or licensor.
LPUVID2300031 November 2023
Produced in USA
BY THE TIME YOU’RE
DIAGNOSED WITH LUPUS,
YOU MAY ALREADY HAVE
ORGAN DAMAGE.
Every lupus flare could increase your chances of developing organ damage. Flares may cause inflammation. Over time, this inflammation can damage your skin, lungs, heart, and kidneys. And it can happen without you even knowing. Don't just push through flares.
TALK TO YOUR DOCTOR TO LEARN HOW YOU CAN LOWER YOUR RISK.
LUPUS FLARES
COULD LEAD TO END-STAGE
KIDNEY DISEASE.
ON-SCREEN TEXT:
WiLL
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Shanelle Gabriel
Poet, singer, Lupus Warrior
@shanellgabriel
SHANELLE:
“I’m a morning workout person, morning yogi, morning just get up and get moving, and it’s like I can’t physically move my limbs. And so that’s usually how I know that there’s a flare.”
SHANELLE:
“I think sometimes it catches me off guard cuz I’ll have a really good, you know, long run of not having any and then I’ll be like, ‘Why am I so tired? Oh yeah, I have lupus.’”
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WHY DO YOU THINK SOME PEOPLE WITH LUPUS ARE IGNORING THE IMPACT FLARES COULD HAVE?
SHANELLE:
“’Now’ doesn’t always think about the future. You know, ‘now’ is thinking about, is about getting though my day. ‘Now’ is I feel good, you know. And so on one hand, it’s a great tool to not necessarily stress yourself out over having lupus cuz you’re really focused on the present and not on the negative side of what could happen. But then you also, you also miss the opportunity to be able to be proactive and to think about what do I need to be doing now.”
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WHAT DO YOU FEEL LUPUS WARRIORS NEED TO FOCUS ON?
SHANELLE:
“Really thinking about how you can move forward in this body in the most affirming, accepting, and loving way moving forward. And that is also trying to have a life without flares, not just make your way through them.”
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“‘now’ doesn’t always think about the future.”
Shanelle Gabriel
@shanellegabriel
ON-SCREEN TEXT:
WiLL TAKE ON LUPUS
US IN LUPUS
Trademarks are owned or licensed to the GSK group of companies.
GSK @2023 GSK or licensor.
LPUVID2300030 November 2023
Produced in USA
LEARN ABOUT TREATMENTS THAT COULD REDUCE FLARES AND PROTECT YOU FROM FUTURE ORGAN DAMAGE.
at any moment, anything that can go wrong can go wrong. it’s super important to think long-term, not just short-term. what are the things i could try to ensure that i am well later.
Shanelle Gabriel
Poet, Singer, Lupus Warrior
I WILL
FIND OUT WHAT I CAN DO TO
BE PROACTIVE.
ON-SCREEN TEXT:
WiLL
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Victoria Gibbs
Fitness Enthusiast, Lupus Warrior
@whatgibbs
VICTORIA:
“My last flare-up I had gained 35lbs of fluid, just from my kidneys not functioning properly. And then I don’t know how long this was in the works, but it eventually led to me having open-heart surgery a couple of weeks ago. So, you know, it’s definitely there, and I think by using oneself as an example, or at least just sharing stories or sharing other people’s experiences, with their permission of course, like, I think you can really open people’s eyes in that capacity.”
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HOW HAS ORGAN DAMAGE CHANGED HOW YOU TAKE ON LUPUS?
VICTORIA:
“I mean, now I think a little bit differently, and I’m being more proactive about everything in general, but I feel like there’s just a big portion of the lupus population who thinks: ‘Oh, that’ll never be me. That’s someone else.’ And, you know, I think we have to all take heed and be humble, and just realize that no, it can be me, and just stay proactive, you know, and keep up with those doctors’ appointments and listening to your body, because if you don’t, it can be, it can be really serious in so many capacities.”
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WHAT WOULD YOU TELL SOMEONE LIVING WITH LUPUS?
VICTORIA:
“You know, you want to give yourself the best chance possible at staying resilient and living your best life, and so I think, you know, take that thought process out of your mind of ‘That will never be me’ to, ‘No, maybe it can be,’ and just stay proactive and do all of the things that you know you need to.”
ON-SCREEN TEXT:
“i feel like there’s just a big portion of the lupus population who thinks, ‘oh, that will never be me.’”
Victoria Gibbs
@whatgibbs
ON-SCREEN TEXT:
WiLL TAKE ON LUPUS
US IN LUPUS
Trademarks are owned or licensed to the GSK group of companies.
GSK @2023 GSK or licensor.
LPUVID2300028 October 2023
Produced in USA
GET INFORMATION ABOUT TREATMENTS THAT COULD LOWER YOUR RISK OF ORGAN DAMAGE.
i had really bad kidney issues, and to be completely honest, kidney damage was the last thing on my mind. now, i’m being more proactive about everything.
Victoria Gibbs
Fitness Enthusiast, Lupus Warrior
I WILL
BREAK THE CYCLE OF REPEATED
FLARES.
ON-SCREEN TEXT:
WiLL
ON-SCREEN TEXT:
WHAT WOULD YOU SAY TO SOMEONE ELSE WITH LUPUS?
ON-SCREEN TEXT:
Jenneh Rishe
Registered Nurse, Lupus Warrior
@liveabove_illness
JENNEH:
“It’s hard to see a life of sickness for yourself. So when you see others go through it, you’re like, ‘Oh, that’s a shame but, like, that’s not going to happen to me because I exercise, and I eat well and all of these things.’”
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WHAT WOULD YOU TELL SOMEONE LIVING WITH LUPUS?
JENNEH:
“I like to use my life as a cautionary tale and not in a morbid way but in a I did all the right things—I was a cross country runner, I ate very healthy, you know—and it still happened to me, and so, we can’t take for granted that tomorrow might be the day that something shows up and that we should be proactive about it.”
“I really think hitting home that point that like one flare could be the thing that kind of sets you over the top as far as advancing to organ damage or whatever it may be, having patients have that understanding I think is really important.”
ON-SCREEN TEXT:
“we can't take for granted that tomorrow might be the day that something shows up. we should be proactive about it (organ damage).”
Jenneh Rishe
@liveabove_illness
ON-SCREEN TEXT:
WiLL TAKE ON LUPUS
US IN LUPUS
Trademarks are owned or licensed to the GSK group of companies.
GSK @2023 GSK or licensor.
LPUVID2300029 October 2023
Produced in USA
USE OUR PREP TOOL TO GET READY FOR A CONVERSATION WITH YOUR DOCTOR AT YOUR NEXT APPOINTMENT.
we’re collaborators of our care. we have to take an active role in that. we need to feel confident to be able to explain how we’re feeling and expressing what’s going on.
Jenneh Rishe
Registered Nurse, Lupus Warrior
