Real Lupus Stories

Hear how other patients cope with day-to-day challenges. You'll get valuable insights into different aspects of managing life with lupus. What's more, their determination will amaze and inspire you!

Coordinate Your Healthcare Team

Michelle makes sure that every member of her healthcare team is aware of what others are doing.

Name: Michelle

Home: Willow Grove, PA

Living with lupus since: 2000

Hobbies: Family and friends

Coping strategies: Staying organized and not afraid to count on others for support

Reinvent Yourself

When lupus made it difficult for Kathy to teach, she found a new career with the flexibility she wanted—and the fulfillment she needed.

Name: Kathy

Home: Monrovia, CA

Living with lupus since: 2006

Hobbies: Travel; food

Coping strategies: Reassigned family roles; leans on sister for extra support

Be Honest

Rena learned the hard way that when you're living with lupus, honesty is always the best policy.

Name: Rena

Home: Chicago, IL

Living with lupus since: 1994

Hobby: Dance

Coping strategy: Is open about her lupus and how it makes her feel—especially when talking to her daughter

Know That You're Not Alone

Linda's best friend has become an "early warning system" who helps Linda conserve energy and persevere.

Name: Linda

Home: Bend, OR

Living with lupus since: 1986

Hobbies: Martial arts, reading, movies, concerts

Coping strategy: Remembers a role model who taught her that people with lupus can still live full, productive lives

Know That Loved Ones Want What's Best for You

Persha discovered that having lupus doesn't affect just her—it matters to everyone in her life.

Name: Persha

Home: Bend, MD

Living with lupus since: 2003

Hobby: Creating jewelry

Coping strategy: Recognizes that taking care of herself is critical to the people who matter most, especially her husband and son

Stay Positive

Nicole accepts that lots of things have changed since her diagnosis—including her attitude.

Name: Nicole

Home: Frisco, TX

Living with lupus since: 2008

Hobbies: Cooking; technology

Coping strategy: Is direct with others about the fact that she has lupus; never feels embarrassed about it

The FREE Lupus Symptoms Reference Kit can help you identify, track, and gain a better understanding of your symptoms.

It includes:
  • Lupus Checklist: Record symptoms and health changes.
  • Lupus Impact TrackerTM: Rate how lupus is affecting your life.
  • Lupus Dictionary: Define lupus-related terms.
  • Lupus Journal: Collect your thoughts about your lupus.

Contact a lupus support specialist toll-free:

1-855-US-IN-LUPUS

(1-855-874-6587)

M-F 8:30 a.m.-5:00 p.m. ET