Lupus Survey: Learning How to Bridge the Communication Gap

One of the challenges in managing lupus is communication. In 2011, GfK Roper North America conducted a survey of 957 members of the lupus community, including patients, family members or friends, and rheumatologists.*

The survey revealed a serious gap between what patients are really feeling and what they share with others, including their rheumatologists. This communication gap could result in certain symptoms being underreported.

Remember, lupus can affect any organ in the body and may even lead to organ damage. So share all your symptoms, even ones you might not associate with lupus, with your healthcare team and your loved ones.

*Data from the 2011 National Burden of Lupus survey funded and developed by Human Genome Sciences and GlaxoSmithKline. This survey included 957 people in the lupus community—502 people who reported being diagnosed with SLE, 204 supporters (family members or friends) of people with lupus and 251 rheumatologists. Data on file, GlaxoSmithKline, 2011.

The FREE Lupus Symptoms Reference Kit can help you identify, track, and gain a better understanding of your symptoms.

It includes:
  • Lupus Checklist: Record symptoms and health changes.
  • Lupus Impact TrackerTM: Rate how lupus is affecting your life.
  • Lupus Dictionary: Define lupus-related terms.
  • Lupus Journal: Collect your thoughts about your lupus.

Contact a lupus support specialist toll-free:

1-855-US-IN-LUPUS

(1-855-874-6587)

M-F 8:30 a.m.-5:00 p.m. ET