Taking Control

When you’re managing a chronic condition like lupus, there are plenty of things you can do to take control of your situation. The FREE Lupus Symptoms Reference Kit can help. Learn More

Involve Friends & Family

Get help from friends and family. They’re a great source of support, but you have to let them know how they can help. Learn More

Ask for Help

Whether you need emotional encouragement, help running errands, or a second set of eyes and ears at a doctor’s appointment, don’t be afraid to lean on those closest to you.

Assign roles to those who are part of your "inner circle." Perhaps you have a friend who's a natural researcher. You might ask that person to monitor lupus research findings (like those you'll find on the sites listed on our Resource Organizations page). Or maybe you have a friend who loves kids. That person might be able to care for your children when you're feeling under the weather. Of course, these are just examples. What's important is that you recognize the skill sets of those dearest to you, map them to things you need help with—and, most importantly, ask for that help! Learn More

Give Back When You Can

Explain to those close to you that sometimes you may not feel up to certain activities or tasks. You can find creative ways to make it up to them on good days. Learn More

Get Informed. Get Empowered!

When you have lupus, every symptom matters. The more you know about lupus, the better you can talk to your doctor.

When you're completely honest with members of your healthcare team about how you're feeling, you're more likely to get the precise kind of help you need to feel better—now, and in the long run. This means you should tell your healthcare team about any problem you have, even if you're not sure that it's connected to lupus. Learn More

You have the power to face your lupus.

Looking for tools that can help? Use the Lupus Checklist and Appointment Prep Guide to spark effective discussions with your doctor.

The FREE Lupus Symptoms Reference Kit can help you identify, track, and gain a better understanding of your symptoms.

It includes:
  • Lupus Checklist: Record symptoms and health changes.
  • Lupus Impact TrackerTM: Rate how lupus is affecting your life.
  • Lupus Dictionary: Define lupus-related terms.
  • Lupus Journal: Collect your thoughts about your lupus.

Contact a lupus support specialist toll-free:

1-855-US-IN-LUPUS

(1-855-874-6587)

M-F 8:30 a.m.-5:00 p.m. ET