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Real Lupus Stories
Hear how other patients cope with day-to-day challenges. You'll get valuable insights into different aspects of managing life with lupus. What's more, their determination will amaze and inspire you!
Coordinate Your Healthcare Team
Michelle makes sure that every member of her healthcare team is aware of what others are doing.
Home: Willow Grove, PA
Living with lupus since: 2000
Hobbies: Family and friends
Coping strategies: Staying organized and not afraid to count on others for support
When lupus made it difficult for Kathy to teach, she found a new career with the flexibility she wanted—and the fulfillment she needed.
Home: Monrovia, CA
Living with lupus since: 2006
Hobbies: Travel; food
Coping strategies: Reassigned family roles; leans on sister for extra support
Rena learned the hard way that when you're living with lupus, honesty is always the best policy.
Home: Chicago, IL
Living with lupus since: 1994
Coping strategy: Is open about her lupus and how it makes her feel—especially when talking to her daughter
Know That You're Not Alone
Linda's best friend has become an "early warning system" who helps Linda conserve energy and persevere.
Home: Bend, OR
Living with lupus since: 1986
Hobbies: Martial arts, reading, movies, concerts
Coping strategy: Remembers a role model who taught her that people with lupus can still live full, productive lives
Know That Loved Ones Want What's Best for You
Persha discovered that having lupus doesn't affect just her—it matters to everyone in her life.
Home: Bend, MD
Living with lupus since: 2003
Hobby: Creating jewelry
Coping strategy: Recognizes that taking care of herself is critical to the people who matter most, especially her husband and son
Nicole accepts that lots of things have changed since her diagnosis—including her attitude.
Home: Frisco, TX
Living with lupus since: 2008
Hobbies: Cooking; technology
Coping strategy: Is direct with others about the fact that she has lupus; never feels embarrassed about it
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